It took me a long time to figure out this new world I'm now a part of. The welcome letter would have opened my eyes a lot sooner. Sometimes I see parents that are clearly new to the journey and I want to tell them this...don't be sorry for what you might think you lost...look at what you have gained.
I love the camaraderie of Autism parents and how we all cheer for each other's kids. I've said it before and I'll say it again...No one truly understands what it's like to live with Autism. No one. Visiting it or knowing it is not living with it.
Autism will break your heart and put it back together again a million times. You know who's got your back....the other parents. They've been there, done that, cried about it and smiled about it. And, they can tell you what they did to survive it.
They get the sarcasm and sense of humor that we must have to survive this unpredictable and crazy life that we are all living.
They understand what it's like to never sleep well.
They know how it feels to give more when you are way past empty.
They understand what it's like to advocate and fight for what is right in school.
They've cheered their kiddos through hours of therapy.
They've celebrated milestones whenever they might happen.
They understand how those looking in at our world view and treat us and our kids.
They've seen the looks and received the criticism.
They feel the heartbreak when their child struggles.
They understand how nothing is easy.
They know what it's like to lose family and friends.
They know how it is to survive without much or any real support.
They know the painful decisions we have to make.
They know what it's like to worry about the future of our kiddos.
Entering this world is extremely overwhelming in so many ways...trying to learn a whole new language, understand a child's behaviors, therapies and how to help them. If newbies were just told at least this part about the other parents, the transition would be a lot smoother and easier to manage.
To know the other parents is to know support like no other, even if they all live inside the computer. If there was a welcome letter, it would be obvious that one can lean on the parents in our community and they will hold you up while you figure the rest out.
Thank you, I needed this!
ReplyDeleteI Agree Completely, Welcome To Our Family!
ReplyDeleteNicely said. GAPS.me is a great resource if you don't already know about it. Check it out.
ReplyDeleteLovely! I have shared it with my Autism family :)
ReplyDelete
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